NICE consultation guidance and recommendations October 2017


With the hope that there will be an opportunity to get the opinion of the Government Lead responsible for people with disabilities I followed yesterday’s post directly today with the following email to Gareth James at the Department of Health                                 …………………………………….

Mr Gareth James

Policy and Strategy / Dementia and Disabilities /Department of Health

Dear Gareth,

Further to my email to you on the 24th September 2017, as I have had neither acknowledgement nor reply I am wondering if my email has gone astray?

As you will be aware, the NICE guidelines and recommendations concerning “Learning disabilities and behaviour that challenges service design and delivery”, are up for discussion and consultation this month.

Although the recommendations are not mandatory, I am sure that those seeking a positive rational strategic outcome to this debate would appreciate feedback directly from you regarding policy direction doubts they are aware I have already raised with you.

For your information, I am attaching copies of my original email to you, and one of a response I have made to an enquiry from a dedicated member of a concerned carers group, the Carers Solidarity Forum.

In my original email, I referred to the fact that 50 years ago the UK was recognized as a world leader in the development of progressive services for people with learning disabilities. It is interesting to note that internationally there still appears to be an ongoing degree of interest shown in what is currently happening in the UK.  Over the last month or two my website ( has received comments from the USA, France, Germany, Switzerland, Norway, Netherlands, Australia, Canada, Brazil, Austria, Iceland, Brussels, Denmark.

Yours sincerely


Author: charlesahenley

Following a varied career starting with 4 years as a city office worker, 4 years service in the RAF both as ground staff ad flying duties, 16 years working for IBM Time systems division as a service engineer, a short spell as a production line supervisor, before returning as service manager to another US business machines corporation who had taken over IBM Time systems division in the UK. The nature of this work brought into contact with day centre establishments for people with learning disabilities and in 1966 when radical and progressive policies were awakening I changed career direction. In the years that followed I worked for five different authorities at centres ranging in size from 24 to 190 attendees of all levels of ability and saw remarkably progressive policies being introduced in the first 20 years for the benefit of the attendees and their carers. Sadly, as a consequence of local authorities gaining full control of policy implementation from 1990 onwards, service support went into a spiral of decline that has made debacle of the rational principles of care in the community. There is now a vital need to take responsibility for service implementation away from local authorities and the NHS and grant it to a single service agency under the direction of its own Minister. Without an urgent change of direction, the current dire situation can only worsen.

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